I am so happy tonight. I am furiously angry tonight.
Rudy went home today. After 6 long, hard months Rudy took his first drive home to be with his parents and siblings. I am so happy for Rudy and the entire family. We are all too familiar with the long days at the hospital, the frustration of the unknown, and the burning desire for normalcy. We also have incredible memories of the day we took our daughter home for the first time…and the second time for that matter. We hope the entire family spends their first of many nights peacefully tucked in their own beds.
On Thursday, another couragious and incredibly cute friend of ours undergoes the third and final step of the 3 stage series of operations to treat HLHS. While we pray and hope for Jack as he embarks on this journey, we hope that our short term trepidation creates long term peace and happiness for all of Jack’s family. He is a bright eyed little boy who is on the cusp of a major milestone. Jack’s family was a major source of support, encouragement, and motivation during Katie’s struggle.
Please keep Rudy and Jack in your thoughts and prayers!
I feel incredible joy for Rudy, Jack and their respective families. While I’m sure there are nerves and fears, they are currently moving toward a more positive tomorrow. My anger tonight is with the fact that we all need to show such thanks for a 6 month old to go home, and for a 2 year old to be undergoing his 3rd surgery. In what deranged world is this our normality? I remember my childhood. Friends, sports, playing in the dirt…life of a child is supposed to be easy. Children are supposed to be carefree. While I am annoyed by the trials and tribulations that both Jack and Rudy have and will endure, I hope that their future is filled with kid-like behavior. Keep on truckin’. I continue to be amazed by the courage and precociousness of these young ones. On the surface they look like any other child, but I truly believe that when you look into the eyes of these children you see a maturity that is unmistakable.
Vickie, Me and Jack at our Toy Drive in December!
April 8, 2009 at 6:57 am
Thank you so much for keeping Jack in your thoughts and prayers. It truely means a lot! I know that Jack has a few special quardian angels that will be watching over him and I bet little angel Katie is getting in on the action!
April 8, 2009 at 9:45 am
yes, how well we know the struggles and heartached of a HLHS Family……prayers for peace for your family during the holidays, and prayers for Jack and Rudy, and all the many HLHS familes…….peace, Dawn’s Mom
April 8, 2009 at 10:02 am
Amy – all of Katie’s friends will be praying for Jack. Good Luck!
Nicole (Kelly Delvecchio’s cousin)
April 9, 2009 at 12:01 am
Such a range of emotions I’ve been feeling the last couple of days – excitement and pure happiness as Rudy and his family are finally reunited at home – what an incredible journey they have all been on these past 6 months – Go Rudy Go !!! Another little warrior who humbles us all with his spirit and his fight – I am so happy for the Geylings !!!
I’ve been thinking about Katie so much – and I’ve been missing her so much too. It’s going to be a tough road in the next couple of months….please know that so many people are travelling with you through it all. Katie remains a permanent fixture in my heart.
To Jack, Amy and all his family, prayers and positive thoughts are with you all tomorrow on this huge step towards a happy, healthy life – Go Jack go !!
My prayers continue for Katie, Rudy, Jack and all of the innocent, brave and inspiring children who fight the good fight against medical conditions that should never be part of a child’s life.
April 9, 2009 at 8:06 am
I too will keep Jack, Rudy, and of course Katie, in my thoughts and prayers.
Much Love,
Denise